Join our Board

Are you someone with...

• a knack for human resources or volunteer management—maybe you’re great at mentoring, recruitment, or team-building?
• expertise in clinical delivery or scientific research?
• a head for accountancy—love spreadsheets, budgets, or financial planning?
• a passion for shaping policy—you’ve got insights into legislation, advocacy, or organisational development?
• personal experience of Huntington’s disease?
• experience in management or leadership—skilled at overseeing projects, building partnerships, or steering strategy?
• a love of PR, social media and awareness raising?

If any of that feels like you, I want to personally invite you to explore joining our volunteer board.

What’s in it for you?

• Real reward, real impact—You won’t just attend meetings—you’ll help shape policies, launch initiatives, and directly enhance the lives of service users across NI.
• Grow your network and your skillset—Board-level engagement offers fantastic professional development, plus the chance to work alongside other inspiring leaders.
• Flexible involvement, friendly atmosphere—We value what you bring, whether you can commit full days or just a few hours each month. Plus, we love a good laugh along the way!
• Bring your passions to life—Whether you’re keen on strategy, finance, HR, or policy, there’s a spot where your talents can shine.

Why join the HDANI Board?

• Well, let me tell you—it’s not just a seat at the table. It’s a chance to shape the future of an organisation making a real difference to people across Northern Ireland impacted by Huntington’s disease.

The commitment? It’s very manageable:

• Quarterly meetings x4 per year (online or in person)—90 minutes long
• Reading board papers beforehand—so you know what’s what
• Optional extra involvement—if you fancy rolling up your sleeves for fundraising, events, or special projects, we’d LOVE that. But no pressure.

Interested? Here’s what to do next:

1. Drop a quick expression of interest—just email sorcha@hdani.org.uk. Let us know a bit about you—your background, what excites you about the board, and how much time you’d like to give.
2. We’ll invite you to a friendly chat (and yes, tea and biscuits are on us!)—just to share more about the role and get to know each other.

No pressure—just a friendly conversation about your ideas, passions, and hopes. And if now isn’t the right time, no worries! But if you’ve been looking for a fun, meaningful way to give back—and grow—this could be it.

Whether you’ve got decades of experience or you’re keen to grow your leadership skills, HDANI is a place where you can make a difference—and have fun doing it.

So, what do you say? Ready to help steer our ship? We’d love to hear from you.

With appreciation and excitement,

Gerry McDermott
Chair of the Board, HDANI